Sunday we made it to church, relaxed some and then off to soccer training. Typical Sunday but busy for me. What wasn't really expected, by me at least, was the snow that started in the morning, switched to rain and then back to snow when we were at training. Definitely made me glad I wasn't driving as I hate driving in slick conditions.
Coming out of soccer the kids were saying they hoped they had a snow day on Monday. I looked at several weather apps and most of them said the heaviest snow would be done by midnight so I said don't count on it. Go figure when I got up early Monday, I glanced at the nbc4i site for school closings and noticed Columbus City schools had closed. Not 5 minutes later I get the text that Calumet was closed for the day as well. Normally I am thrilled by this due to hating to drive but not yesterday. Yesterday I was scheduled for my hour long Actemira IV infusion with a followup doc appointment afterwards. I called Josh in a panic asking what should I do thinking I would have to reschedule. Nope, he told me to bring them and have them sit in the lobby quietly and play on their Kindles till I was done. The lobby was just a short hallway from where I was so they should be fine. My doc office was fine with this as well.
As it turns out, I explained to the kids that I needed them on their best behavior and they behaved wonderfully. I didn't hear a peep out of them the entire time I was on IV. When I met with my RA doc, she and her nurse told me how great they were the entire time. The nurses were keeping an eye on them as they called patients back as well knowing I was in the infusion room. My RA doc told me that the kids were welcome any time. Granted an hour long infusion would be the max I would have them wait in the lobby by themselves but it was nice to hear how good they were from others. I was very happy with them during the entire visit and told them as much.
Unfortunately the rest of the day did not go as smoothly. We made it home fine and the kids were decent the rest of the day so that wasn't the issue. What I didn't expect happen was getting a migraine on top of my usual side effects of severe fatigue. Thankfully the migraine hit after Josh was home and we were out running a few minor errands. The being out was good and bad but mainly good since it wasn't full blown till we got home. I was able to get everyone fed and then able to lay down on the couch some before tucking everyone in for bed.
Acetimra is a great med and combined with my other medications, seems to be continuing to work. The best thing Actemira does is keep the swelling down in my hands so I am able to wear my wedding ring. Unfortunately it also has side effects that last 12-14 hours after infusion. Within 3 hours of infusion, I usually try and be home so when my body gives out, I can take a long nap. I'm usually just tired for the next day or so which isn't too bad since I accomodate for it. Knowing the migraine hit right after infusion this time, next month I am going to have to preemptively take Advil migraine in hopes of stopping it before it starts. Just another thing I have to plan for and adapt. Such is life.
Until tomorrow and I do plan on posting tomorrow...
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