Today started out very early as Josh's alarm goes off just before 5am. As soon as it went off, I immediately turned on the news and pulled up the school closings on my cell. While Josh got ready for work, I watched City of Columbus schools close which meant Calumet was sure to follow. We got the text around 5:45 which for me meant some more much needed sleep. For the kids, it meant playing in the snow on and off most of the day. All things considered, the snow day went smoothly. What didn't go so smoothly was how my joints decided to behave today frustrating me badly.
Once I got word that my husband made it to work safely, I was able to do my morning eval of how my body felt. I do this every single day as it dictates what I can and can't do today. Also tells me how many spoons I have to work with for the day.
Talking about spoons for the day sounds funny doesn't it but really it is a way to explain to people without any chronic illnesses what we go through each day. It is called the Spoon Theory and it was developed by Christine Miserandino. You can read more about it at this link http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/
Another way I respond to people on how my days go is that I have good day, bad days and in between day. Today was an in between day with an extra helping of frustration with the lower half of my body. I'm going to rant and whine some here so sorry ahead of time. From my hips down to both ankles, my joints hurt. Not only do they hurt but it seems like I can't move them the way I want. I end up limping if I am up for more than 5 minutes at a time and causing more pain. With the snow day, being up for longer than 5 minutes at a time was unavoidable so I shuffled along trying to pay attention to lifting my feet in case my nerves decide to get in on everything and make my foot drop. It made me feel clumsy and awkward while up. Even while at physical therapy for my neck, Kevin and Megan noticed something wasn't right and both asked me what was wrong. The only explanation I could give was my lower half isn't working well today. I blame it on my RA with some nerve issues mixed in causing everything to go nuts frustrating me to no end.
I was able to take a nap at least while the kids watched TV some at least, It did make me laugh when I missed a call from Josh and when I called him back, instead of getting annoyed he simply asked if I was sleeping when he called the first time. He knows me well and understands that my body usually gives out forcing me to take a nap at some point during the day usually.
My hope is that my stiffness in my joints eases up soon as I really don't want to have to switch RA meds. My Actemira is keeping the swelling down in my hands enough to allow me to wear my wedding ring. I don't want to go to another med knowing my hands will swell back up in between meds. I like my wearing my wedding ring and it bothers me when I can't.
Tomorrow is another day, another doctor's appointment. Pain management is up next for me before I am off 2 weeks from medical appointments aside from my PT. I probably should try and rest as much as possible as I can feel a crash coming soon. What this means is that I can barely function when it does. I get the kids to school come home and sleep the rest of the day. Anyway, that is another post for another day.
Until tomorrow.
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